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ORIGINAL ARTICLE
Year : 2015  |  Volume : 1  |  Issue : 2  |  Page : 121-126

Parents' expectations from rehabilitation services for their children with cerebral palsy: A retrospective study


Department of Rehabilitation Psychology, National Institute for the Mentally Handicapped, Secunderabad, Telangana, India

Correspondence Address:
Seshagiri Rao Joshi
Department of Rehabilitation Psychology, National Institute for the Mentally Handicapped, Manovikas Nagar, Bowenpally, Secunderabad, Telangana
India
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Source of Support: None, Conflict of Interest: None


DOI: 10.4103/2395-4264.173458

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Background: Early identification and intervention has brought change in the societies towards disability and its management. However, dependency on drug-cure (medical model) has influenced the community expectations on the outcomes of rehabilitation process. The psychosocial rehabilitation process has been sparsely studied in Indian context. Aim: The present study aims to study whether the expectations of the parents change across the age, as recorded in chief complaints, in a way that psychological disorders are late to be detected and are generally not recognized by parents and medical professionals. The study also found some interesting findings such as ratio of males and females registered and the mean age range of the children registered. Methodology: The present study has examined and analyzed the documentation of case history files of children brought by their parents and caregivers to the National Institute for the Mentally Handicapped, Bowenpally, General services (n = 3,960) for male and female ratio, mean age of registration, developmental and social age (DA and SA) for 3-36, 36-72, and 72-120 month age ranges, respectively. Results: As the age increases psychosocial difficulties also increases with psychomotor problems. Registered male cases were more than female cases. The visits to the Psychology department for the behavior problems have increased across the age range. Conclusions: Psycho-social rehabilitation and family counseling in managing the person with cerebral palsy is effective than behavior modification programs. A mobile Rehabilitation Services team must visit area wise for offering in-the-neighborhood services along with psycho-education for remote areas. Schools need to be sensitized that if motor and speech are the only disabilities in a child, he should not be refused admission. Parents counseling is necessary for vulnerability of psychological problems in this population due to restrictive environment and explain Medical Model VS Bio-Psycho-Social Model.


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